I saw my Rheum. specialist today. I think the appointment went well over all - I really like this doctor.
I mentioned to him that the pain in my hands has spread to my palms, so that if I press my palms against something it will hurt. I also mentioned that I have noticed tremors in my legs, where I'll be doing something normal and my legs will start shaking badly. The day after my last tremor-leg-thing, I woke up feeling like someone had beat up my leg with a baseball bat. Even though it felt bruised, there wasn't any visible change. He said that for the palms, that was normal. But the tremors he's going to mention to my regular doctor - it's very likely not something RA related, so she might have some other ideas. (I'll probably also mention it to my thyroid doctor when I go next month.) If they think it's serious enough, they might refer me to another specialist to get checked out (that would seven doctors, I believe).
Anyway, he did the normal check-up stuff where he pushes on my hands and moves my legs around. All that went fine. I'd brought a list of questions, so I might as well just go down the list here.
Is pursuing acupuncture therapy a good idea? Would it be helpful? Can it be used in place of the medications?
The answer is yes - I could use acupuncture instead on Mobic, and it might do just as well/better. But it is not a cure-all. I will not be able to use it instead of one of the toxic/hard core Rheum. drugs. If my RA flares up, I have to take the real medicine, though I can still use acupuncture on the side to treat the pain/symptoms. (My thought is that if I go on medication that takes weeks to a month to start showing signs that it's working, I could do the acupuncture so I don't have to take Mobic or something while I'm waiting for the tough drugs to kick in.) It's our decision though. I think the nearest specialist is about an hour away, and I'd have to go once or twice a week, and I highly doubt the military will cover the expenses.
What medications can I take in conjunction with my medicines (i.e. mobic + methotrexate etc)?
Yes, if the pain is extreme. But we want to keep medication to a minimal. (My doctor calls my medicine "poison.") I'm all about minimal drugs, so that's fine with me.
I want to get treated for the hip problem/bursitis. What do I need to do to treat it?
I can get a steriod shot, but again we want to reduce the amount of drugs I'm on. I've been referred to physical therapy, so I'll start that up soon. After a month or so of doing that, I should stop having pain. I'm being taken off of Flexeril, because it doesn't seem to be helping anymore so there's no point in continuing to take it.
Are there nutritional treatments for RA/RA symptoms? Should I avoid certain foods? Do some foods help reduce inflammation?
No. Unfortunately, there are no foods to avoid or focus on for RA.
I got some bloodwork done, and in a few days we're going to call in to make my next appointment, see how the bloodwork looked, and sign up for physical therapy. I should be hearing from my regular doctor about the leg tremors and what she wants to do, but if I don't I can always mention it to my thyroid doctor next month. I also want to make an appointment with my tummy doctor to discuss the weird cramps and such, but before that I really need to get in the habit of doing all my fiber pills and stomach medicine regularly. (Ech. Not fun, I tell you - though I will say, taking the stomach medicine in Root Beer works wonders. I can't even taste it anymore.)
Wednesday, January 21, 2009
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2 comments:
I read at least the first page of your blog, several entries, and you sound so much like me. I'm 23 now and have a lot of your symptoms. Rash/ tremors/ joint pain/ fatigue etc. I also have Diabetes and Celiac (You should definitely look into getting tested for Celiac because of your stomach issues). I have been in and out of hospitals for sooo long! i am finally with a good doctor so hopefully i will find out soon what is wrong.
you can email me at aj_ruley@yahoo.com :) its always good to talk to someone who understands!
AJ
Thank you for your kind comment. I'll definitely look into Celiac. :)
What type of diabetes do you have? My younger sister is Type 1. (Autoimmune diseases enjoy invading my family members' lives.)
Have you had any sort of diagnoses yet?
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